Fetal Alcohol Syndrome - Cathy Burks

Thursday, the 13th of November 2003
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  Gigi: Welcome. Thank you for coming. Tonight's guest Cathy Burks, will be speaking about Fetal Alcohol Syndrome.

  Kathy: thank you for inviting me.

  Gigi: Kathy,I would like to start by asking what are the first signs of Fetal Alcohol Syndrome?

  Kathy: Some children have facial features that indicate signs of FAS.

  andreas: greetings

  Kathy: Also you can tell when they don't meet developemental milestones.

  andreas: are the facial features the initial signs, or are there others?

  Gigi: I know that children with Down Syndrom have distintive facial features, what type of features would stand out in a child with FAS?

  Kathy: Some facial features are small curved ears, small slanteed eyes. n

  Kathy: Sorry for the slow response

  Gigi: If the child is not rolling over or sitting up around the expectied time, could that be a sign?

  Kathy: Cries a lot and is not very responsive.

  Kathy: That is mostly a sign of developemental delay.

  Kathy: - has joined the chat -

  Kathy: Not neccesarily FAS.

  Gigi: Are there any typs of therapy that would be beneficial?

  Kathy: - has joined the chat -

  Kathy: I had difficulties and got disconnected somehow.

  Kathy: Sorry.

  andreas: We still on?

  Kathy: yes.

  Kathy: I don't know what happened?

  andreas: Any specific advice for parents regarding education for AS children?

  Kathy: Will you repeat the last question please?

  andreas: FAS children

  Kathy: Make sure you get the proper diagnosis.

  andreas: A licensed psychologist would do that?

  Kathy: Make sure that your school is aware of your child's diagnosis.

  Kathy: Yes.

  Kathy: The school may also do testing if requested.

  Gigi: Has FAS ever been missed diagnosed for another syndrome such as Autism?

  Kathy: If developemental delays are shown at school.

  Kathy: No.

  Kathy: Not to my knowledge.

  Kathy: FAS is a very distinct condition.

  Gigi: Could you give an expamel of a common behavior of FAS?

  Kathy: Temper tantrums.

  Kathy: Very moody and cries very easily.

  Kathy: In school they can often be labeled as trouble makers.

  Gigi: Are the tantrums any thing like a RAD child?

  Kathy: No.

  Kathy: In school they don't make friends easily.

  Kathy: They are often misunderstood.

  Kathy: The behavior is perceived as not comliant to rules, when in reality the child don't understand what

  Kathy: instructions are given to them.

  Kathy: They may have problems processing information and instructions.

  Kathy: Structure is a must for FAS children.

  andreas: Sound like what has been called Behavior Disorders

  Kathy: yes.

  Gigi: What type of disorders might come along with FAS?

  Kathy: These children are often misdiagnosed because of their behavior.

  Kathy: Slow growth and developement, impaired learning, attention problems., mental health problems.

  andreas: What is the prognosis for an FAS child

  andreas: What is the prognosis for an FAS child?

  Kathy: Early diagnosis and treatment with medicines can improve long-term outcome.

  Kathy: These children can thrive and lead productive lives with good support systems and early diagnosis.

  Kathy: Parents should impower themselves with correct information about FAS and not listen people that stereotype FAS children.

  Kathy: For instance, the behaviors that these children exhibit.

  Gigi: What resources do you recommend?

  Kathy: FAS parent support groups, Atlanta Alliance on Developemental Disabilites.

  Kathy: Council on Alcohol and Drugs, Healthy Mothers, Healthy Babies Coalition of

  Kathy: Georgia. Also the Marcus Institute is a great resource.

  Kathy: There are two books for parents to read,

  Kathy: Fantastic Antone Succeeds, and Fantastic

  Kathy: Antone

  Kathy: Grows up.

  Kathy: I highly recommend these books. They have helped me greatly.

  Kathy: Also you may go to www.aadd.org. as a resource.

  Kathy: This is the Atlanta Alliance on Developemental Disabilites.

  Kathy: Sorry.

  Kathy: For help and treatment in your area call this number (1-800-822-2539).

  andreas: Great info, Kathy. Thank you!

  Gigi: Do you know of any therapy that might help? I have heard that horse therapy has helped many children with all types of syndromes and disorders.

  Kathy: You're welcome. I hope I've said something that may help other parents.

  Kathy: That is true. My son receives Horse Therapy and I have seen great results.

  Kathy: Also we have had Family

  Kathy: Counseling sessions with our therapist to help deal with the behaviors.

  Kathy: Having good support sytems and resources can make all the difference.

  Kathy: The

  Kathy: book "Fantanstic Antone Succeeds" can be obtained the Georgia Center Lending Library.

  Kathy: On this website.

  Kathy: Any other questions?

  andreas: Good info

  Gigi: Kathy, thank you for all the info. You helped with some misunderstandings I had heard before.

  andreas: - has left the chat -

  Kathy: Thank you.

  Kathy: Good night.

  Gigi: Andreas, thanks for joining us.